So, during my early twenties in college, I was ALWAYS on the go. Like the normal college student, I stayed up ‘til 3am, ate pizza and top ramen to conserve money for fun times & bills, worked at least 2 jobs at a time, and made sure I graduated with a decent GPA.
During the first fall of my graduate degree, I noticed a massive difference in my body. I began to have difficulty when I chewed and swallowed my food, I sounded as if I had a speech impediment when I spoke, and my overall strength had depleted. There were days that my eyes were so fatigue, I’d get double vision & had to drive with my hand over one eye to see evenly.
At the time, I worked at a preschool and brought home nearly every bug that was going around. The sicker I was, the more symptoms presented. Eventually, I couldn’t lift my head without straining—I had beverages coming out of my nose— & I had difficulty breathing. I left doctors’ offices with the result of sinusitis and a bottle full of antibiotics. It wasn’t until my dad suggested I’d go to an ophthalmologist for my double vision that I’d seek some truth.
Once the ophthalmologist heard the trouble I had with my eyes, he sent me to a neuro-ophthalmologist and expressed that the physician would know how to take care of me. By this time, you could imagine what all was going through my head! I definitely thought I had a brain tumor.
Low and behold, the neuro had the answer… he diagnosed me with Myasthenia Gravis (MG).
The thing is, my life was still pretty normal after the news. Aside from the ungraceful symptoms of double vision, a wonky eye, drooling (YES! SPONTANEOUS DROOLING), muzzled speech, etc. my day to day did not change. I was able to pop a pill (mestinon, a pill created to combat MG) and within thirty minutes I was A-Okay! At the time, I thought I had the easiest condition to manage… Boy, was I wrong.
After two years of living with MG, I was finally hit with a “wonky eye” that would not go away. I was prescribed steroids & after the symptom worsened, I learned that my disease had a more complex, darker side.
Within a matter of 6 months, I underwent three hospitalizations due to MG crisis (a crisis occurs when the respiratory muscles are affected and may lead to respiratory failure). Flash forward to almost a year later, I can say my life has drastically changed. I’ve tried treatments I never knew existed (plasmapheresis, IVIG, immunosuppressant’s), I’ve had two permacaths placed & removed from the right atrium of my heart, and I was hospitalized two more times for an MG crisis and for discovered blood clots.
As previously mentioned, self-care has always been a main focus I promoted within my career. And through my MG trials, I’ve vowed to make self-care a main focus in my & my family’s life. I know there is hope for myself & for others to overcome any form of struggle. My mission is to utilize this blog as a platform to be inspired & to inspire others to live a healthier life. If I can do it, then so can you!